References and Recommended Reading

Recommended Reading 

Books for girls only

Girls Growing Up on the Autism Spectrum: What Parents and Professionals Should Know About the Pre-teen and Teenage Years by Shana Nichols

The Care and Keeping of You from the American Girl Library is one in a great series of helpful books for girls.

Sex, Puberty, and All That Stuff: A Guide to Growing Up by Jacqui Bailey is a more detailed book about puberty, dating and sex.

Period.: A Girl’s Guide by JoAnn Loulan (2001 version)

Recommended Reading

Puberty brings about challenges for both the child/young person and their caregivers. Here are a list of some books to help parents through the challenging times.

Adolescents on the Autism Spectrum: A Parent’s Guide to the Cognitive, Social, Physical, and Transition Needs of Teenagers with Autism Spectrum Disorders by Chantal Sicile-Kira

Asperger’s Syndrome And Sexuality: From Adolescence Through Adulthood by Isabelle Henault

Girls Growing Up on the Autism Spectrum: What Parents and Professionals Should Know About the Pre-teen and Teenage Years by Shana Nichols, Gina Marie Moravcik and Samara Pulver Tetenbaum

Autistics’ Guide to Dating: A Book By Autistics, For Autistics and Those Who Love Them or Who Are in Love with Them by Emilia Murray Ramey and Jody John Ramey

Growing Up on the Spectrum: A Guide to Life, Love, and Learning for Teens and Young Adults with Autism and Asperger’s by Lynn Kern Koegel Ph.D. and Claire LaZebnik

Taking Care of Myself: A Hygiene, Puberty and Personal Curriculum for Young People with Autism by Mary Wrobel

Hygiene and Related Behaviors for Children and Adolescents with Autism Spectrum and Related Disorders: A Fun Curriculum with a Focus on Social Understanding by Kelly J. Mahler (this comes with a CD with printable worksheets)

The New Social Story Book, Revised and Expanded 10th Anniversary Edition: Over 150 Social Stories that Teach Everyday Social Skills to Children with Autism or Asperger’s Syndrome, and their Peers by Carol Gray

Autism Life Skills: From Communication and Safety to Self-Esteem and More – 10 Essential Abilities Every Child Needs and Deserves to Learn by Chantal Sicile-Kira

Making Sense of Sex: A Forthright Guide to Puberty, Sex and Relationships for People With Asperger’s Syndrome by Sarah Attwood

When My Worries Get Too Big! A Relaxation Book for Children Who Live with Anxiety with visual chart by Kari Dunn Buron

Yoga for Children With Autism Spectrum Disorders: A Step-by-Step Guide for Parents and Caregivers by Dion and Stacey Betts

Books on Transition

  • Preparing for Life: The Complete Guide for Transitioning to Adulthood for those with Autism and Asperger’s Syndrome by Dr. Jed Baker
  • Transition IEPs: A Curriculum Guide for Teachers and Transition Specialists by Paul Wehman (this book has 300 pages of sample transition IEPs for autism, LD, ED, ID and physical disabilities. A great read!)
  • Autism & the Transition to Adulthood: Success beyond the classroom by Paul Wehman, Marcia Datlow Smith and Carol Schall
  • Growing up on the Spectrum by Lynn Kern Koegel and Claire LaZebnik
  • Transition Planning: Setting Lifelong Goals by Jennifer Graham and Peter Wright, Esq.
  • Career Training and Personal Planning for Students with Autism Spectrum Disorders: A Practical Resource for Schools, by Vicki Lundine and Catherine Smith. This is a book for educators but may also be beneficial to parents who want to help facilitate their child’s program.

Social and Life Skills

  • Hygiene and Related Behaviors for Children and Adolescents with Autism Spectrum and Related Disorders: A Fun Curriculum with a Focus on Social Understanding by Kelly J. Mahler (this comes with a CD with printable worksheets) that helped us fill in the gaps for my son’s needs and I think your kids will enjoy the games and social stories they include.
  • The New Social Story Book, Revised and Expanded 10th Anniversary Edition: Over 150 Social Stories that Teach Everyday Social Skills to Children with Autism or Asperger’s Syndrome, and their Peers by Carol Gray
  • Autism Life Skills: From Communication and Safety to Self-Esteem and More – 10 Essential Abilities Every Child Needs and Deserves to Learn by Chantal Sicile-Kira
  • When My Worries Get Too Big! A Relaxation Book for Children Who Live with Anxiety with visual chart by Kari Dunn Buron
  • Yoga for Children With Autism Spectrum Disorders: A Step-by-Step Guide for Parents and Caregivers by Dion and Stacey Betts
  • The Autism Playbook for Teens: Imagination-Based Mindfulness Activities to Calm Yourself, Build Independence, and Connect with Others (The Instant Help Solutions Series) by Irene McHenry PhD and, Carol Moog PhD
  • The Science of Making Friends, (w/DVD): Helping Socially Challenged Teens and Young Adults Paperback by Elizabeth Laugeson
  • The Asperkid’s (Secret) Book of Social Rules: The Handbook of Not-so-obvious Social Guidelines for Tweens and Teens With Asperger Syndrome Paperback by Jennifer Cook O’Toole
  • The Executive Functioning Workbook for Teens: Help for Unprepared, Late, and Scattered Teens (An Instant Help Book for Teens) Paperback by Sharon A. Hansen MSE NBCT
  • The Self-Esteem Workbook for Teens: Activities to Help You Build Confidence and Achieve Your Goals (Instant Help Book for Teens) Paperback by Lisa M. Schab LCSW
  • Asperger’s Rules!: How to Make Sense of School and Friends Paperback by Blythe Grossberg
  • The Survival Guide for Kids with Autism Spectrum Disorders (And Their Parents) Paperback by Elizabeth Verdick
  • Online Safety for Children and Teens on the Autism Spectrum: A Parent’s and Carer’s Guide Paperback by Nicola Lonie
  • Parenting ASD Teens: A Guide to Making it Up As You Go Paperback by Andrew Schlegelmilch
  • Social Skills for Teenagers with Developmental and Autism Spectrum Disorders: The PEERS Treatment Manual Paperback by Elizabeth A. Laugeson
  • How to Teach Life Skills to Kids with Autism or Asperger’s by Myers, Jennifer Mcilwee, Future Horizons 2012
  • The Social and Life Skills MeNu: A Skill Building Workbook for Adolescents with Autism Spectrum Disorders Barber, Karra 2011

Further Education

Realizing the College Dream with Autism or Asperger Syndrome, by Ann Palmer

Navigating College: A Handbook on Self Advocacy Written for Autistic Students from Autistic Adults Paperback by Autistic Self Advocacy Network

Aquamarine Blue 5: Personal Stories Of College Students With Autism by Dawn Prince-Hughes

Employment

Asperger’s on the Job: Advice for People with Asperger’s or High Functioning Autism and their Employers, Educators, and Advocates Paperback by Rudy Simone

Developing Talents: Careers for Individuals with Asperger Syndrome and High-Functioning Autism  by Temple Grandin and Kate Duffy
This book is a unique blend of information and advice based on personal experiences. It is an extremely useful and practical book that introduces step-by-step processes for job searching with a key section on the impact of ASD in the workplace.

Independent Living

Living Independently on the Autism Spectrum: What You Need to Know to Move into a Place of Your Own, Succeed at Work, Start a Relationship, Stay Safe, and Enjoy Life as an Adult on the Autism Spectrum Paperback By Lynne Soraya

Sexuality and Relationships

Asperger’s Syndrome And Sexuality: From Adolescence Through Adulthood by Isabelle Henault

Autistics’ Guide to Dating: A Book By Autistics, For Autistics and Those Who Love Them or Who Are in Love with Them by Emilia Murray Ramey and Jody John Ramey

Making Sense of Sex: A Forthright Guide to Puberty, Sex and Relationships for People With Asperger’s Syndrome by Sarah Attwood

The Autism Spectrum, Sexuality and the Law: What every parent and professional needs to know Paperback by Tony Attwood

Asperger’s Syndrome

The Complete Guide to Asperger’s Syndrome Paperback by Tony Attwood

All Cats Have Asperger Syndrome by Kathy Hoopmann

The Curious Incident of the Dog in the Night-Time Paperback by Mark Haddon

Written by People with ASD

Thinking in Pictures by Temple Grandin

Beyond the Wall: Personal Experiences with Autism and Asperger Syndrome

by Stephen Shore

The Way I See It, Revised and Expanded 2nd Edition: A Personal Look at Autism and Asperger’s Paperback by Temple Grandin

Thinking in Pictures, Expanded Edition: My Life with Autism Paperback by Temple Grandin

Ido in Autismland: Climbing Out of Autism’s Silent Prison Paperback by Ido Kedar

The Reason I Jump: The Inner Voice of a Thirteen-Year-Old Boy with Autism by Naoki Higashida

Can I Tell You About Asperger Syndrome?: A Guide for Friends and Family Paperback by Jude Welton

References

Background

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Arlington, VA: American Psychiatric Publishing.

Brieber, S., Neufang, S., Bruning, N., Kamp‐Becker, I., Remschmidt, H., Herpertz‐Dahlmann, B., … and Konrad, K. (2007). Structural brain abnormalities in adolescents with autism spectrum disorder and patients with attention deficit/hyperactivity disorder. Journal of Child Psychology and Psychiatry, 48(12), 1251-1258.

Courchesne, E., Campbell, K., and Solso, S. (2011). Brain growth across the life span in autism: age-specific changes in anatomical pathology. Brain Research, 1380, 138-145.

Gomot, M., and Wicker, B. (2012). A challenging, unpredictable world for people with autism spectrum disorder. International Journal of Psychophysiology, 83(2), 240-247.

Green, S. A., Rudie, J. D., Colich, N. L., Wood, J. J., Shirinyan, D., Hernandez, L., … and Bookheimer, S. Y. (2013). Overreactive brain responses to sensory stimuli in youth with autism spectrum disorders. Journal of the American Academy of Child and Adolescent Psychiatry, 52(11), 1158-1172.

Hall, J., Philip, R. C., Marwick, K., Whalley, H. C., Romaniuk, L., McIntosh, A. M., … and Young, A. W. (2012). Social cognition, the male brain and the autism spectrum. PloS one, 7(12), e49033.

Just, M. A., Cherkassky, V. L., Keller, T. A., and Minshew, N. J. (2004). Cortical activation and synchronization during sentence comprehension in high-functioning autism: evidence of underconnectivity. Brain Research 127(8), 1811-1821.

Maxwell, C. R., Villalobos, M. E., Schultz, R. T., Herpertz-Dahlmann, B., Konrad, K., and Kohls, G. (2015). Atypical laterality of resting gamma oscillations in autism spectrum disorders. Journal of Autism and Developmental Disorders, 45(2), 292-297.

Richey, J. A., Damiano, C. R., Sabatino, A., Rittenberg, A., Petty, C., Bizzell, J., … and Davidson, R. J. (2015). Neural mechanisms of emotion regulation in autism spectrum disorder. Journal of Autism and Developmental Disorders, 45(11), 3409-3423.

Sturman, D. A., and Moghaddam, B. (2011). The neurobiology of adolescence: changes in brain architecture, functional dynamics, and behavioral tendencies. Neuroscience and Biobehavioral Reviews, 35(8), 1704-1712.

World Health Organization (WHO) (1992) International Classification of Mental and Behavioural Disorders: ICD-10. Geneva: WHO.

Zeeland, S. V., Ashley, A., Dapretto, M., Ghahremani, D. G., Poldrack, R. A., and Bookheimer, S. Y. (2010). Reward processing in autism. Autism Research, 3(2), 53-67.

Emotional Wellbeing

Cumine, V., Dunlop, J. and Stevenson, G. (2009) Asperger Syndrome: A Practical Guide for Teachers. David Fulton Books. Paperback.

Faculty of Public Health (2010). Concepts of Mental and Social Wellbeing. Available at: http://www.fph.org.uk/concepts_of_mental_and_social_wellbeing

National Institute for Health and Care Excellence (2013). Social and emotional wellbeing for children and young people. Available at: https://www.nice.org.uk/guidance/lgb12/resources/social-and-emotional-wellbeing-for-children-and-young-people-60521143067845

Smith Myles, B. (2003) Behavioral forms of stress management for individuals with Asperger syndrome.  Journal Child and Adolescent Psychiatric Clinics of North America 12(1) pp 123-141 [On-line]: UK Available

Stallard, P. (2002) Think Good Feel Good: A Cognitive Behaviour Workbook for Children.  Wiley-Blackwell.

Employability

Disability Discrimination Act (1995). London: HMSO.

Equality Act (2010). London: HMSO

The Disability Act (2005). Available at: http://www.irishstatutebook.ie/eli/2005/act/14/

The Citizens Information Act (2007). Available at: http://www.irishstatutebook.ie/eli/2007/act/2/enacted/en/html

The UN Convention on the Rights of Persons with Disabilities (CRPD) by the European Union. Available at: http://www.un.org/disabilities/convention/conventionfull.shtml

Relationships and Sexuality

Attwood, T. (2013) Adolescent Issues for Individuals with AS Autism Asperger’s Digest:  http://autismdigest.com/adolescent-issues-for-individuals-with-as/

Dewinter, J., Vermeiren, R., Vanwesenbeeck, I., Van Nieuwenhuizen, C.(2016) Adolescent boys with autism spectrum disorder growing up: follow-up of self-reported sexual experience, European Child and Adolescent Psychiatry, 25, 9, 969

Douglas-Scott, S (2004), ‘Sexuality and Learning Disability’. In Burtney, E and Duffy, M (eds), Young People and Sexual Health: individual, social and policy contexts, Basingstoke: Palgrave Macmillan

Hall, Edward T. (1966). The Hidden Dimension. Anchor Books

Lawrie, B. and Jillings, C. (2004). Assessing and addressing inappropriate sexual behaviour in brain-injured clients, Rehabilitation Nursing, 29(1): 9-13.

Moxon, L. (2010). Sex and the special child. Special education Needs. Available at: https://senmagazine.co.uk/articles/articles/senarticles/sex-and-the-special-child-how-do-we-educate-young-people-with-sen-about-sex

Pask, L., Hughes, T.L and Sutton, L.R. (2016) Sexual knowledge acquisition and retention for individuals with autism. International Journal of School and Educational Psychology (4) 2

Ray, F., Marks, C., and Bray-Garretson, H. (2004). Challenges to treating adolescents with Asperger’s syndrome who are sexually abusive. Sexual Addiction and Compulsivity, 11, 265–285

Sullivan, A., and Caterino, L. C. (2008). Addressing the sexuality and sex education of individuals with autism spectrum disorders. Education and Treatment of Children, 31(3), 381-394.

School Life

Emerson, E (2001) Challenging Behaviour: Analysis and intervention in people with learning disabilities. (2nd Edn). Cambridge University Press

Kasari C and Smith T. (2013) Interventions in schools for children with autism spectrum disorder: methods and recommendations. Autism, 17(3):254-67

Transitions

Mesibov, G.B., Shea, V, and Schopler, E. (2005). The TEACCH approach to autism spectrum disorders. New York, New York Springer.